Resources, Resources & Organizations

Celiac Disease Centers, Organizations, Support Groups & Resources

36 Comments 29 September 2008

CELIAC DISEASE CENTERS

California
Wm. K. Warren Medical Research Center For Celiac Disease, San Diego

Stanford Celiac Sprue Clinic

Illinois
The University of Chicago Celiac Disease Center
Rush University Adult Celiac Disease Program

Maryland
University of Maryland Center For Celiac Research

New Jersey
The Kogan Celiac Center

New York
Celiac Disease Center at Columbia University

CELIAC DISEASE ORGANIZATIONS

United States
Celiac Disease Foundation (CDF)
Celiac Sprue Association (CSA)
Gluten Intolerance Group of North America GIG)
National Foundation For Celiac Awareness (NFCA)

Canada
Canadian Celiac Association (CCA) 
Ottawa Chapter
Toronto Celiac

Europe
Association of European Coeliac Societies (AOECS)
Celiac Youth Of Europe (CYE)
Slovenia Celiac Society

CELIAC DISEASE SUPPORT GROUPS

Georgia
Atlanta Metro Celiacs

Massachusetts
Boston-The Healthy Villi

Minnesota
Celiac Friends Twin Cities Support Group (Minneapolis – St Paul Area)

New York
Suffolk County Celiacs
Westchester Celiac Support Group

Washington
Bellingham Gluten Intolerance Group

OTHER RELATED RESOURCES

Celiac.com
Gluten-Free Restaurant Awareness Program
Celiac Disease Meetups

MESSAGE BOARDS

Listserv
SillyYaks Yahoo Groups

I will keep adding to this list.
If you know of a celiac disease organization that should be added to this list, please leave the name and a link in the comments below. Please do not link to businesses. If you are a business, or would like to let me know about a business, please email me the info.
Thank you.

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Your Comments

36 Comments so far

  1. 1
     
  2. 2
     
    CeliacChick says:

    Thanks, Nicole. I already have Meetups listed and linked. :)

  3. 3
     
    Maureen says:

    We have a support group in Bellingham, WA called the Bellingham Gluten Intolerance Group. Our website is http://www.glutenfreeway.info.
    Maureen

  4. 4
     
    Tara says:

    The Kogan Celiac Center – St. Barnabas Health Care System in Livingtson, NJ.
    http://www.sbhcs.com/services/celiac/index.html

  5. 5
     
    Beth Hillson says:

    Hi Kelly,

    It would be great if you would add the American Celiac Disease Alliance to your listings. The web site is
    http://www.americanceliac.org

    This is the only organization that unites other organizations and patients on a national scale. Primary mission is to advocate for the celiac patient through legislation, medical protocol, and diet.

    Many thanks. Beth

  6. 6
     

    Please list my Celiac Group in your list of Groups in Illinois? I am a board member on the UofC Celic Disease Center Advisory Board BUT also run my own group. Thank you very much! and Thank you for all your hard work!
    LuEllen Joy Giera
    President and Founder NWSCG

  7. 7
     
    Diane says:

    Northern NJ Celiac Support Group
    Bergen County, NJ
    Email Diane @ dcaleca@hygradebusiness.com
    or Call Susan @ 201-447-1077

  8. 8
     
    Connie Maltin says:

    I belong to a great group in South Florida. They meet every other month and always have great speakers, a yearly vendor fair, and sub support for families with children.
    Palm Beach County Celiac Support Group
    15927 Laurel Creek Drive
    Delray Beach, FL 33446
    contact: Phyllis Kessler 561-637-0396
    pkessler28@aol.com
    http://www.pbcceliacsupportgroup.org/

  9. 9
     
    Kit Kellison says:

    Dr. Weinstock in St. Louis is wonderful for celiac disease and post-diagnosis care. He is one of the few gastros who understand that diagnosis isn’t the end of it. He’s treated me with Xifaxzn for SIBO. I’ve had another GI who had never heard of SIBO. They do research there too.

    http://www.gidoctor.net/index.html

    Dr. Weinstock
    Specialists in Gastroenterology
    11525 Olde Cabin Rd.
    St. Louis MO 63141
    314-997-0554

  10. 10
     
  11. 11
     
    Beulah Owens says:

    Marion Area Celiac Support Group (new group)
    meets at Emanuel Luthern Church
    241 S. Prospect St
    Marion, Ohio
    Contact: Beulah Owens beacraft_9mar@yahoo.com
    or call parish health nurse at Emanuel Luthern
    Church 740-383-2184

  12. 12
     

    In northeast Ohio, our group meets at the Independence Library (south of Cleveland) and at locations on both the east and west side. Join us for GF dinners, health expos and a cookie exchange!

    The Northeast Ohio Celiac support group
    website: http://www.geocities.com/clevelandceliac
    email: clevelandceliac@yahoo.com
    Contact people:
    Trisha Lyons RD LD
    tlyons@metrohealth.org
    Laurie Sammon
    lpsammon@cox.net
    Toni Kosinar
    tlk3464@roadrunner.com

  13. 13
     
    Anne Luther says:

    Please add Gluten Free in Central Arkansas, branch of GIG.
    http://www.centralarkansasgig.org

  14. 14
     
    Peter Russell says:

    Please mention Coeliac UK, whose website is http://www.coeliac.co.uk. From there, follow the ‘Find your local Coeliac UK Group’ link to find Coeliac Support Groups throughout the United Kingdom.
    Tel. (+)44 1494 437 278

  15. 15
     
  16. 16
     
    Claire says:

    Madison Area Gluten Intolerance Chapter
    Madison, WI

    http://www.glutenfreemadison.org/

  17. 17
     
    Dennis Dendinger says:

    The North Coast Celiac Support Team is located in the Bellevue / Sandusky Ohio area, our group meets the second Monday of the month.

    North Coast Celiac Support Team
    website: http://www.northcoastceliacsupportteam.webs.com
    email: dc3boys@hotmail.com
    Contact: Dennis & Cheryl Dendinger

  18. 18
     
    Diane says:

    Indianapolis, Indiana

    GlutenFreeIndy Support Group

    http://glutenfreeindy.com

  19. 19
     
    Jenn says:

    Under Canada, Canadian Celiac Association, please add the Vancouver Chapter. Our website is http://www.vancouverceliac.ca
    Thanks!
    Jenn

  20. 20
     
    sande says:

    We have a gluten free ministry here in Butler, Pa.
    It is called Gluten Free Cravings.We are a independant group that meets monthly at North Street Christian Church, 220 W.North St, Butler, Pa

  21. 21
     
    Lynda says:

    Vancouver Chapter of the Canadian Celiac Association
    211-1212 West Broadway
    Vancouver, BC V6H 3V1
    info@vancouverceliac.ca
    http://www.vancouverceliac.ca

  22. 22
     

    Alamo Celiac GIG
    http://www.alamoceliac.org
    Alamo Celiac Austin
    Contact: Francie Kelley, 512-301-2224, fkelley@austin.rr.com
    Alamo Celiac Corpus Christi
    Contact: Susan M. Revier, 361-855-6810
    jamesrevier@grandecom.net
    Alamo Celiac San Antonio
    Contact: Anne Barfield, 210-340-0648
    annebarfield@satx.rr.com

  23. 23
     

    HOUSTON CELIAC SUPPORT GROUP
    http://www.houstonceliacs.org
    Janet Y. Rinehart, Chairman
    281/679-7608
    Website has an outline on how to start a gluten-free diet, and more….

  24. 24
     
    J GORE says:

    Charleston, S.C. AT MUSC at Rutledge Tower
    Medical University of South Carolina
    For those of you who have a rash
    Dermatologist Dr. Maize Sr. on tenth floor at MUSC is very good at diagnosis.
    After over ten years of the rash and 7 doctors he diagnosed me with celiac on the first trip. Of course after diagnosis it was followed by biopsy or two for insurance purposes.
    J G

  25. 25
     
    J GORE says:

    Charleston, S.C. AT MUSC at Rutledge Tower
    Medical University of South Carolina
    For those of you who have a rash
    Dermatologist Dr. Maize Sr. on tenth floor at MUSC is very good at diagnosis.
    After over ten years of the rash and 7 doctors he diagnosed me with celiac on the first trip. Of course after diagnosis it was followed by biopsy or two for insurance purposes.
    J G

  26. 26
     
    Carol Hinton says:

    Please add the Middle Georgia GIG to your list of support groups. We meet in Warner Robins, Georgia. Check our website: http://middlegeorgia.gigbranches.org for meetings and contact information. Email: middlegeorgiagig@yahoo.com For further information 478-397-5061

  27. 27
     
    Alex Pierschalla says:

    The Madison Area Gluten Intolerance Chapter meets monthly in Madison, Wisconsin. Visit http://www.glutenfreemadison.org. for details. We have an excellent newsletter for members! Past issues are available online.

  28. 28
     
    Karen Geronime says:

    The Northland Celiac Support Group is in Minneapolis/St.Paul,Minnesota. Please add to your list of Minnesota support groups, along with our wet site, http://www.northlandceliacs.org. That is the best place to get up-to-date information.

    Karen
    Chair

  29. 29
     
    Danene Gooding says:

    I run a Celiac Disease support group in Flemington, NJ. My daughter was diagnosed 7 years ago.

    We meet monthly at the the Hunterdon Medical Center, on Wescott Drive. (908) 806-7407 Danene Gooding
    dgooding1@embarqmail.com

  30. 30
     
    Bev Messner says:

    Our support group would like to be listed. It is as follows:

    Richland County Celiac Support Group
    We meet the first Tuesday of each month at 7 p.m. at the First Presbyterian Church at 399 S. Trimble Road, Mansfield, OH.
    Contact Person: Bev Messner
    Contact Phone: 419-589-5972
    Email address: bevmessner@aol.com

  31. 31
     

    This support group is located in Manchester NH. You can get more info. either by emailing me at the above address, or checking out our website at http://www.rocknh.net

    Thanks,
    Michelle

  32. 32
     

    Sorry, forgot to mention the email address…so here is all the info.

    Michael and Michelle Ouellette
    ROCK’n New Hampshire
    Manchester, NH
    http://www.rocknh.net
    rocknh2006@gmail.com
    603-627-1831

  33. 33
     
    Barbara Hicks says:

    Hi,

    Please list our support group from southwestern Missouri –

    Tri Lakes Celiac Support Group
    Kimberling City, Missouri
    (about 10 miles from Branson)
    Contact Person: Barbara Hicks
    Email: honedu@centurytel.net
    Phone: 417-739-2703
    We meet every other month — different days and times.
    Please contact me for information.

  34. 34
     
    Cheryl Hutchinson says:

    In south central PA, the Gettysburg Gluten-free Group meets twice a year, in May and November at the Gettysburg Hospital. Contact: Cheryl Hutchinson at hutchjc@earthlink.net

  35. 35
     
    Jean Meagley says:

    Toledo, Ohio and surrounding area.
    Gluten Free Support of Toledo

    http://glutenfreesupportoftoledo.com

  36. 36
     
    Carl Fulton says:

    I’ve had Celiac for 22 years. Before moving to the Atlanta area I did not have problems finding gluten free foods, including prepared foods and ingredients. Not so here. I’m using mail order supplies, but the cost is extreme. Know of any local stores as a source?

    Thanks,
    Carl


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Kelly Courson

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Thanks for stopping by! I'm Kelly Courson and this is where I've shared my gluten-free finds since 2003. The world has been my gluten-free oyster for 14 years now and I love sharing what I've learned in order to help others adapt to a gluten-free diet. Have a look around and feel free to leave a comment. Connecting with people like you is what has kept me going this long! Seriously.
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