CELIAC DISEASE CENTERS
California
Wm. K. Warren Medical Research Center For Celiac Disease, San Diego
Stanford Celiac Sprue Clinic
Illinois
The University of Chicago Celiac Disease Center
Rush University Adult Celiac Disease Program
Maryland
University of Maryland Center For Celiac Research
New Jersey
The Kogan Celiac Center
New York
Celiac Disease Center at Columbia University
CELIAC DISEASE ORGANIZATIONS
United States
Celiac Disease Foundation (CDF)
Celiac Sprue Association (CSA)
Gluten Intolerance Group of North America GIG)
National Foundation For Celiac Awareness (NFCA)
Canada
Canadian Celiac Association (CCA)
Ottawa Chapter
Toronto Celiac
Europe
Association of European Coeliac Societies (AOECS)
Celiac Youth Of Europe (CYE)
Slovenia Celiac Society
CELIAC DISEASE SUPPORT GROUPS
Georgia
Atlanta Metro Celiacs
Massachusetts
Boston-The Healthy Villi
Minnesota
Celiac Friends Twin Cities Support Group (Minneapolis – St Paul Area)
New York
Suffolk County Celiacs
Westchester Celiac Support Group
Washington
Bellingham Gluten Intolerance Group
OTHER RELATED RESOURCES
Celiac.com
Gluten-Free Restaurant Awareness Program
Celiac Disease Meetups
MESSAGE BOARDS
Listserv
SillyYaks Yahoo Groups
I will keep adding to this list.
If you know of a celiac disease organization that should be added to this list, please leave the name and a link in the comments below. Please do not link to businesses. If you are a business, or would like to let me know about a business, please email me the info.
Thank you.
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the meetups are great areas for support too!
http://www.meetup.com/search/?keywords=Celiac+Disease&country=us&locationPickerRef=0&dbCo=us&dbOutsideUsLink=&zip=&submitButton=Search
Thanks, Nicole. I already have Meetups listed and linked.
We have a support group in Bellingham, WA called the Bellingham Gluten Intolerance Group. Our website is http://www.glutenfreeway.info.
Maureen
The Kogan Celiac Center – St. Barnabas Health Care System in Livingtson, NJ.
http://www.sbhcs.com/services/celiac/index.html
Hi Kelly,
It would be great if you would add the American Celiac Disease Alliance to your listings. The web site is
http://www.americanceliac.org
This is the only organization that unites other organizations and patients on a national scale. Primary mission is to advocate for the celiac patient through legislation, medical protocol, and diet.
Many thanks. Beth
Please list my Celiac Group in your list of Groups in Illinois? I am a board member on the UofC Celic Disease Center Advisory Board BUT also run my own group. Thank you very much! and Thank you for all your hard work!
LuEllen Joy Giera
President and Founder NWSCG
Northern NJ Celiac Support Group
Bergen County, NJ
Email Diane @ dcaleca@hygradebusiness.com
or Call Susan @ 201-447-1077
I belong to a great group in South Florida. They meet every other month and always have great speakers, a yearly vendor fair, and sub support for families with children.
Palm Beach County Celiac Support Group
15927 Laurel Creek Drive
Delray Beach, FL 33446
contact: Phyllis Kessler 561-637-0396
pkessler28@aol.com
http://www.pbcceliacsupportgroup.org/
Dr. Weinstock in St. Louis is wonderful for celiac disease and post-diagnosis care. He is one of the few gastros who understand that diagnosis isn’t the end of it. He’s treated me with Xifaxzn for SIBO. I’ve had another GI who had never heard of SIBO. They do research there too.
http://www.gidoctor.net/index.html
Dr. Weinstock
Specialists in Gastroenterology
11525 Olde Cabin Rd.
St. Louis MO 63141
314-997-0554
Chicago Metroceliacs: http://metroceliacs.blogspot.com/
Marion Area Celiac Support Group (new group)
meets at Emanuel Luthern Church
241 S. Prospect St
Marion, Ohio
Contact: Beulah Owens beacraft_9mar@yahoo.com
or call parish health nurse at Emanuel Luthern
Church 740-383-2184
In northeast Ohio, our group meets at the Independence Library (south of Cleveland) and at locations on both the east and west side. Join us for GF dinners, health expos and a cookie exchange!
The Northeast Ohio Celiac support group
website: http://www.geocities.com/clevelandceliac
email: clevelandceliac@yahoo.com
Contact people:
Trisha Lyons RD LD
tlyons@metrohealth.org
Laurie Sammon
lpsammon@cox.net
Toni Kosinar
tlk3464@roadrunner.com
Please add Gluten Free in Central Arkansas, branch of GIG.
http://www.centralarkansasgig.org
Please mention Coeliac UK, whose website is http://www.coeliac.co.uk. From there, follow the ‘Find your local Coeliac UK Group’ link to find Coeliac Support Groups throughout the United Kingdom.
Tel. (+)44 1494 437 278
Atlanta
http://www.celiacdisease.meetup.com/11
Madison Area Gluten Intolerance Chapter
Madison, WI
http://www.glutenfreemadison.org/
The North Coast Celiac Support Team is located in the Bellevue / Sandusky Ohio area, our group meets the second Monday of the month.
North Coast Celiac Support Team
website: http://www.northcoastceliacsupportteam.webs.com
email: dc3boys@hotmail.com
Contact: Dennis & Cheryl Dendinger
Indianapolis, Indiana
GlutenFreeIndy Support Group
http://glutenfreeindy.com
Under Canada, Canadian Celiac Association, please add the Vancouver Chapter. Our website is http://www.vancouverceliac.ca
Thanks!
Jenn
We have a gluten free ministry here in Butler, Pa.
It is called Gluten Free Cravings.We are a independant group that meets monthly at North Street Christian Church, 220 W.North St, Butler, Pa
Vancouver Chapter of the Canadian Celiac Association
211-1212 West Broadway
Vancouver, BC V6H 3V1
info@vancouverceliac.ca
http://www.vancouverceliac.ca
Alamo Celiac GIG
http://www.alamoceliac.org
Alamo Celiac Austin
Contact: Francie Kelley, 512-301-2224, fkelley@austin.rr.com
Alamo Celiac Corpus Christi
Contact: Susan M. Revier, 361-855-6810
jamesrevier@grandecom.net
Alamo Celiac San Antonio
Contact: Anne Barfield, 210-340-0648
annebarfield@satx.rr.com
HOUSTON CELIAC SUPPORT GROUP
http://www.houstonceliacs.org
Janet Y. Rinehart, Chairman
281/679-7608
Website has an outline on how to start a gluten-free diet, and more….
Charleston, S.C. AT MUSC at Rutledge Tower
Medical University of South Carolina
For those of you who have a rash
Dermatologist Dr. Maize Sr. on tenth floor at MUSC is very good at diagnosis.
After over ten years of the rash and 7 doctors he diagnosed me with celiac on the first trip. Of course after diagnosis it was followed by biopsy or two for insurance purposes.
J G
Charleston, S.C. AT MUSC at Rutledge Tower
Medical University of South Carolina
For those of you who have a rash
Dermatologist Dr. Maize Sr. on tenth floor at MUSC is very good at diagnosis.
After over ten years of the rash and 7 doctors he diagnosed me with celiac on the first trip. Of course after diagnosis it was followed by biopsy or two for insurance purposes.
J G
Please add the Middle Georgia GIG to your list of support groups. We meet in Warner Robins, Georgia. Check our website: http://middlegeorgia.gigbranches.org for meetings and contact information. Email: middlegeorgiagig@yahoo.com For further information 478-397-5061
The Madison Area Gluten Intolerance Chapter meets monthly in Madison, Wisconsin. Visit http://www.glutenfreemadison.org. for details. We have an excellent newsletter for members! Past issues are available online.
The Northland Celiac Support Group is in Minneapolis/St.Paul,Minnesota. Please add to your list of Minnesota support groups, along with our wet site, http://www.northlandceliacs.org. That is the best place to get up-to-date information.
Karen
Chair
I run a Celiac Disease support group in Flemington, NJ. My daughter was diagnosed 7 years ago.
We meet monthly at the the Hunterdon Medical Center, on Wescott Drive. (908) 806-7407 Danene Gooding
dgooding1@embarqmail.com
Our support group would like to be listed. It is as follows:
Richland County Celiac Support Group
We meet the first Tuesday of each month at 7 p.m. at the First Presbyterian Church at 399 S. Trimble Road, Mansfield, OH.
Contact Person: Bev Messner
Contact Phone: 419-589-5972
Email address: bevmessner@aol.com
This support group is located in Manchester NH. You can get more info. either by emailing me at the above address, or checking out our website at http://www.rocknh.net
Thanks,
Michelle
Sorry, forgot to mention the email address…so here is all the info.
Michael and Michelle Ouellette
ROCK’n New Hampshire
Manchester, NH
http://www.rocknh.net
rocknh2006@gmail.com
603-627-1831
Hi,
Please list our support group from southwestern Missouri –
Tri Lakes Celiac Support Group
Kimberling City, Missouri
(about 10 miles from Branson)
Contact Person: Barbara Hicks
Email: honedu@centurytel.net
Phone: 417-739-2703
We meet every other month — different days and times.
Please contact me for information.
In south central PA, the Gettysburg Gluten-free Group meets twice a year, in May and November at the Gettysburg Hospital. Contact: Cheryl Hutchinson at hutchjc@earthlink.net
Toledo, Ohio and surrounding area.
Gluten Free Support of Toledo
http://glutenfreesupportoftoledo.com