Exciting things are going on in the world of gluten related disorders!
Did you see this recent article New Guide to Who Really Shouldn’t Eat Gluten in the Wall Street Journal?
This isn’t really news to those of us in Gluten-Free World, though. It’s still exciting that we are getting closer to having clear classifications in the medical world.
We’ve come a looong way, Baby!
A big Thank You to the Wall Street Journal for helping with awareness!
I thought it would be fun to take a poll at this time. Why are you gluten-free? Thanks!
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I put self-diagnosed celiacs, but it’s closer to self-diagnosed, doctor-confirmed. I went gluten-free and my eczema went away, I have a family history of it, and I get really sick when I eat it. Given all that, my doctor said there wasn’t any reason to do all the testing.
I tested negative for celiac, but my doctor said I should still stay away from it since it makes me feel so awful.
i have DH without having celiac, but I still need a gluten free diet
I’ve had health issues that haven’t been diagnosed because of puzzling test results. A specialist recommended I try a gluten free diet. I responded well to it, so now we are heading back to the doctor’s next week for more investigation.
I’m like Madeline. I have so many symptoms of celiac my Dr. said I didn’t have to make myself miserable with a challenge. I also have autoimmune thyroid disease that responds to the diet but I couldn’t check two answers.
Thanks for sharing the poll information. I read the article written in the Wall Street Journal but as you mentioned, we are one step ahead.
Great posting!
My uncle was diagnosed with Celiac after getting diagnosed with T cell Lymphoma. He passed away as a result of not being diagnosed earlier in life. He had just retired and had a hard battle before succumbing. I would strongly suggest anyone that feels they may have celiac be tested. 1 out of 4 in our family have celiac and we would not know it if we hadn’t been diagnosed.
A great way to make people be aware of their health. It provides a lot of help especially in taking care of their health. Thanks for sharing this!
While my daughter did test positive to a wheat allergy, she also has several autoimmune disorders–alopecia areata, hypothyroidism, and Raynaud’s plus eczema and dermatitis issues. I’m pretty confident she was actually an asymptomatic celiac, but now we’ll never know for sure. After being off gluten for more than a year, she’s more sensitive than ever and will have stomach issues when exposed. It’s been an interesting ride. I don’t think my daughter struggles with each issue individually, but has a more global autoimmune disorder syndrome. Praying for a breakthrough in understanding autoimmune disorders overall.
My son has Celiac – diagnosed at age 13 but likely had it for a long time. Why isn’t routine gene testing done on children? Once you know you have the gene(s), you can do routine checks for Celiac markers. It seems so obvious…
I had been feeling rotten for years (sick EVERY TIME I ate). My Aunt has celliacs, so I did some research, and I had about 18 of the 20 symptoms. I put myself on the gluten free diet, and I feel so much better (2+) years gluten free. The bloating, pain and IBS symptoms are all but gone. I have to be very careful as gluten is in just about everything. I have stopped eating processed food of any kind, but if I come into contact with gluten I know it right away. Thank you for helping people stay informed about celiac..
Hi Alice! I would love to talk to you about your experience to decide to go gluten-free yourself. Would you be interested in speaking with me?
For 20 years I’ve had neuropathy (nerve pain in feet and legs) and have been on Lyrica for many years. Six months ago I was diagnosed (using many blood tests/stool sample) as being gluten sensitive. I have now been off of the Lyrica for three months. In addition to now being gluten free, I am sugar free. I also have been diagnosed as hypoglycemic. I have two health conditions that are challenging. But, I am doing well and am grateful to now feeling so much better. Also, my eczema is gone.
Your poll does not allow multiple reasons. It should.
Gluten makes me sick…period. Self-diagnosed. I suspected it for a long time, then went off it & several major health issues cleared up! I’m not willing to eat it again & get sick in order to have any tests that will confirm what I already know!