Celiac in the News

Celiac Disease Article In The New York Times

6 Comments 12 October 2008

The title of this article didn’t mention celiac disease by name, but maybe that intrigued people.  A Debilitating Disease That Is Often Unknown focused on two extreme athletes that despite intense training had less than stellar performances. Celiac disease turned out to be the culprit behind their physical limitations and the gluten-free diet helped them to not only heal, but reach their goals.

(If Mimi Winsberg’s name sounds familiar to you, it may be because she has been mentioned on CeliacChicks before.)

In my opinion, this article was excellent because it may have caught the attention of people that may not have read about celiac disease if it were in the title of the article, and the nearly bionic people featured may have helped to dispute any preconceived notions others may have that we are a just a bunch of hypochondriac’s or alternative diet junkies. If anything, I’m wondering if people who are athletic in any way, may start a gluten-free diet to see if it helps with their performance. Hopefully, a few will be diagnosed along the way.

What did you think about this article?

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6 Comments so far

  1. 1
     
    Marcie says:

    I agree. It is a very nice article. I was diagnosed about 5 years ago, but am convinced that I’ve had it all my life. The part that I find frustrating is that I know several people with symptoms of celiac disease. But, they refuse to be tested. Awareness has increased over the past few years. Hopefully it will increase even more.

  2. 2
     
    Karen says:

    I think it is wonderful that someone is getting the word out to people who may have never heard of it before.

  3. 3
     
    Dawn says:

    That’s an interesting way to look at the disease, and definitely shows it differently than focusing on people who have “always been sickly.” I don’t know if I feel stronger, per se (I also don’t workout like they would be) but I have a lot less muscle pain after dance classes now. It used to be really painful to recoup after a class (I was very weak from ankle surgeries) and since being GF, I would just call it normal stiffness.

  4. 4
     
    TJ says:

    Wow! That is a great article! My symptom as anemia so I love seeing that listed as a symptom. And infertility is also important since most fertility ‘specialists’ don’t even know what Celiac is, much less how to test for it.

    I agree with Marcie that it’s so frustrating that people with typical symptoms won’t get tested. Even my own sister won’t test her 5 and 7 year olds and they have an Aunt and Grandmother with Celiac. Dr. Green says that first generation relatives WITHOUT symptoms should be tested about every three years.

  5. 5
     
    Janet Oliver says:

    I think it’s frightening to read that today’s doctors still have so little understanding of celiac disease. That they still think a child could grow out of it, or that an adult couldn’t possibly have it, if it wasn’t diagnosed in childhood, is staggering. How many horror stories of mis-diagnosis will it take before doctors take the disease seriously? I know of a man who was in his eighties and dying of prostate cancer when he was diagnosed. This is ultimately a disease of mal-nutrition. It kills if left untreated. Which brings me to the positive aspect of the article – the wasting- away symptoms described by the atheletes. No amount of pro-biotic filled yogurts (currently being touted as a “cure” for IBS, but what is likely undiagnosed celiac disease, or iron tablets (I was prescribed those, too) will fill the nutritional void left by the ravages of CD.

  6. 6
     

    Kelly — this is my thing for very personal reasons (long story). Helping people get diagnosed properly and also helping them to realize their potential. You do not have to be a victim of celiac disease. Our only limits are the ones we place on ourselves. I used to live in NM, where Dave Hahn lives when he is not guiding Everest climbs, Denali, Vinson Massif (highest peak in Antarctica). He’s on the ski patrol there. Once he figured out his “health” problems, having celiac is not a road-block to his extreme passion. Of course, as he says, it helps to be hanging out in the rice bowl of the world so much of the time (the Himalayas). But, this is what is important for people to understand — with the right lifestyle changes, nutrition, and movement (exercise), we can be incredibly healthy and full of vitality. Strong bones, strong blood, all that good stuff. I’m off this morning to Omaha and the National CSA Conference and Dietitian Day. I am on a mission to start pushing some other forms of therapy with this whole thing. I want to shake up the celiac community a little bit. 🙂 Let’s not worry so much about where the next GF donut is coming from and start on a path of greater strength and vitality. Lots of ways to do that. I’ll keep you posted. And Kelly, thanks for your support. I do appreciate it. We’re all in this together!
    Onward…
    P.S. Now finding the next piece of high quality GF chocolate, that’s a different story.
    In good health,
    Melissa


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Kelly Courson

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Thanks for stopping by! I'm Kelly Courson and this is where I've shared my gluten-free finds since 2003. The world has been my gluten-free oyster for 14 years now and I love sharing what I've learned in order to help others adapt to a gluten-free diet. Have a look around and feel free to leave a comment. Connecting with people like you is what has kept me going this long! Seriously.
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